Click HEREfor the BE Extraordinary 3 on 3 Basketball Tournament Team Registration Form

Click Here for the BE Extraordinary 3 on 3 Basketball Tournament Sponsor Packet

In 2015, a small group of 3 families came together to found the Texas Bladder Exstrophy Group.  We are an online support group open to families in the Texas/Oklahoma area that are affected by Bladder Exstrophy.  In the past year and a half, we have grown to a group of over 15 families that feel the need to connect locally and know that they are not alone on this roller coaster journey.

Because we are a local group, we are able to really focus on the need of connection.  We host Mom's Night Out quarterly, and we are planning a family event in the near future.  Another thing we have been blessed to be able to do is foster frienships in our children and ourselves that are shaping up to be some of the most important relationship in our lives.  We have been so fortunate to watch our kids play together, laugh, be silly, comparemitrofanoff's, talk about shared doctor's, and come to the realization that they will always have someone to talk to!

Since we began, we have been overwhelmed by the outpouring of support and love that have let our kids raise over $20,000 to help babies born different with the March of Dimes.  We are excited to be able to bring our group together this year to begin to raise money specifcally for the Association for the Bladder Exstrophy Community.  As parents, we truly believe in the importance of showing our children that they can be amazing and they can accomplish amazing things.  Our group is hosting the 4th  Annual BE Extraordinary 3 on 3 Basketball Tournament in March; it is an honor and such a pleasure to be able to help in an area that has so affected each of our families, and we are humbled and thankful for your sponsorship  for this exciting event.

$2,825.00 of $9,000.00
Raised by 21 donors

21 people have donated.
Jessica Marcum
Elizabeth Marshall
Jessica Bracken boyd
Kate Reinmiller
Amber Ostrander
Marti Shew
Andy Cibotti
Ballers of the 90’s Lipman
Necia Dexter
Rich & jenny Skinner
The hyman Family
Shannon Farrell