Alivia’s 2-Step for a Cure

Saddle up it’s time for a FUNdraiser!
To gather, to educate and

give from the heart,
To round up resources and do our part to spread awareness and be part of a solution about Pitt Hopkins and Inclusion!


No donation is too small, So mosey over we can’t wait to see ya’ll!

 

September 17, 2022

3pm - 8pm

 

Fun Activities for the Family - BBQ Dinner - Silent Auction - Raffle - Live Music

 

 

All proceeds benefit the Pitt Hopkins Research Foundation.

 

To further discuss sponsorship opportunities, contact: 

Aimee | 916.871.3637 | aimeemartinez@me.com

 

 

About Pitt Hopkins Syndrome: Pitt Hopkins Syndrome (PTHS) is a rare, neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by significant developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, and seizures. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally. Since the gene that causes Pitt Hopkins was only found in 2007, currently there are approximately 1500 people in the world diagnosed with this syndrome, however we believe there are many more. Learn more at: https://pitthopkins.org. 

 

 

 



Date: September 17th, 2022

Time: 3:00pm PDT

Location
3824 East Woodbridge Road,
Acampo, CA, US, 95220