Hello friends,
Many of you know me as an active "normal" adult who is pretty deaf and has undergone back and other orthopedic surgeries. What many of you do not know is that I was born with a rare genetic disorder called osteogenesis imperfecta type I. This disorder is often reffered to as "Brittle Bone Disease", however, research now indicates that it is much more than brittle bones. OI is rare, it is thought that less than 5% of the world population is affected. The OI Foundation has been instrumental in developing ways to treat the symptoms and help those of us living with the disorder to live a more complete life. Through research and information that has been coming to light in recent dercades, physicians now have a better understanding of how to treat and diagnose the OI patient. There are roughly 20,000-50,000 known cases in the US who depend on this foundation to help shed light on this disorder. Please help in any way you can by donating/sponsoring me as I participate in the National Unbreakable Spirit® Walk-n-Wheel, which I will be doing from my home state on July 19, 2024.