Vincent was born October 11,2015 (at the Shell Station in Romeoville). He was first admitted to Edwards hospital for failure to thrive at one month old. He only weighed 6 lbs. 2 oz. which was below his intitial birth weight. During this vist to the hospital, doctors noticed his head circumference and shape were abnormal. After performing an MRI, Vincent was diagnosed with Colpocephaly. Colpocephaly is a congenital brain abnormality in which the occipital horns - the posterior or rear portion of the lateral ventricles (cavities) of the brain -- are larger than normal because white matter in the posterior cerebrum has failed to develop or thicken.
Vincent was released from the hospital however he continued to struggle with sucking coordination. He was sent to a lactation specialist, speech therapist, and GI doctor. At 2 months old, Doctors decided to put in a GTube. Vincent has issues with his lungs, seizures, apnea, regulating temperature and severe reflux. He was in and out of the hospital for stomach bleeding in March and April 2016, requirng surgery to repair the stomach. At 7 months he went in for surgery to have an NJ tube and central line put in. He is currently at Lurie's Children's Hospital until he is stable enough to be moved to "Almost Home for Kids." They are hoping he will be able to return home in August 2016.
Please see updates!
Vincent received his angel wings on June 17, 2017 @ 4:48pm.
Services will be held at 7:00pm on Wednesday, June 21st, 2017 at Minooka Bible Church. 412 N. Wabena Ave., Minooka, IL
We ask that everyone wear red. Red was the color that we believe Vincent could see. His Celebration of Life theme is "Oh the places you will go!"
On June 30, 2016 Baby Vincent was released from the Hospital and moved to "ALmost Home Kids". He is ecpected to remain their until his first birthday. He continues to gain wait with his TPN (daily nutrition) and feedings. He also tested negative for Prader Willie Syndrome and Angelman Syndrome.